Kidney stone prevention course: Illustrated by Raphael School of Athens

KIDNEY STONE PREVENTION COURSE

Our newest venture – the Kidney Stone Prevention Course.

It arose from this idea: Kidney stone prevention depends a lot on proper diet and fluids, which patients control. This site tells people what that diet and what those fluids should be, but not how to eat that diet or drink those fluids in real life.

They have to learn how.

So we built the kidney stone prevention course to help them learn.

Just as Raphael imagined generations of brilliant minds come alive together in The School of Athens (Raphael, 1509 -1511; Apostolic Palace in the Vatican.), we – on a vastly lower plane of existence – imagined and have, in the kidney stone prevention course actuated the knowledge on this site into real life. 

The Missing Link

Physicians know this. You can’t learn to practice from a book – or a website. You learn from other doctors and then perfect yourself in practice.

In the same way, patients cannot learn how to implement a prevention plan just by reading. They need a teacher. Then they can perfect themselves over time.

Now you know my assumption, my working hypothesis if you want to be fancy.

Who Shall Teach Kidney Stone Prevention?

Physicians

Certainly. But how much, how long, in what detail?

Do I have an hour for this? For each patient? Food is a big topic, almost infinitely detailed. Thousands of choices in each food category. I say, we need 65 mEq/d of diet sodium. I point out food labels. Portion sizes. Problems of eating out, take in. My hour passes as a cloud in summer, here and gone again. My patient leaves and is not educated enough to practice wisely. Too little, too short a time.

In fact, stone experts at one outstanding kidney stone prevention center now offer courses to scale education. Perhaps this will become more common with time. Perhaps physicians cannot allocate time to courses within the stringencies of modern practice

Nurses

Certainly, but nurses encounter the same problems as physicians. Who pays? Where does the time come from?

Dieticians

Certainly, and as a prime part of their professional education and training. But most – perhaps almost all – focus on large scale issues like diabetes, hypertension, CKD, and obesity. Kidney stones occupy a niche. Even running courses, the few in that niche suffice for too few patients; the US contains millions of stone formers. To serve them in traditional nutrition counseling demands a great expansion of skills within the profession.

A Kidney Stone Prevention Course

Between the organized and precious skills of professionals and the clutter and sheer chaos of everyday life, let’s interpose public education aimed squarely at diet and fluids for kidney stone prevention – try this and see what happens. Moreover, let us use modern technology to lower cost and save time.

Scale

A course permits one person to educate many people. Social media and web tools scale a course: people need not convene physically.

Cost

Physicians, nurses, nutritionists sell their time. People in a course split the cost amongst them. This makes education more affordable.

Patient Time

An hour of education might require another hour to travel there, park, unpark and go back home or to work. That takes time from work, or children, or other matters. A course transmitted using modern media makes travel to some one place unnecessary.

Curriculum

Any course arises from some compendium of reliable knowledge. Physicians and nurses and dieticians possess such knowledge in their minds but students in a course have no access to it apart from the hours of teaching. Just as patients cannot learn to manage diet and fluids by reading they cannot learn just by listening; they and their teachers need to share a common base of knowledge – like the textbook for any conventional course in a school or on the web.

We Have Produced a Kidney Stone Prevention Course

We have done it. I and my writing colleague Jill Harris.

It Depends on this Site as its Knowledge Base

Jill wrote many of the most popular articles on the site about diet and fluids, and set out to find a way to use her materials as a course for patients. She and they can use other articles as well as source material. The site itself rests on a foundation of peer reviewed articles from PubMed to which its main articles link.

She Does One on One Patient Education and Finds it Limiting

For a long time, Jill has worked one on one with stone patients and encountered the problems of scale and cost. She long ago gave up on a fixed office format and coaches by phone or web media. But even so, scale and cost limit her reach. For 12 years she did brief education calls for thousands of patients nationally who used Litholink as their testing service. From her practice and her past Jill came to understand that scale and media and cost create many kinds of compromises in what patients can get.

She Uses Social Media to Form Active Support Groups

The web abounds in spontaneous social media groups of kidney stone patients. Patients value them and use them. Jill formed one for those interested in the course and curates it personally.

She Has Tried Her New Course Format Five Times Thus Far

Out of it all she chose her present format and has used it in five courses so far.

Her courses make room for up to 12 people. This size optimizes cost per patient, efficient use of one teacher, and opportunity for each patient to interact and ask questions. It may change with experience.

The main topics follow the medical logic of the site: fluids, sodium, calcium, oxalate, how to read lab reports, and questions and answers. It runs in six one hour sessions. I have personally participated thus far in two question and answer sessions – at the ends of the first two courses.

Where Does the Kidney Stone Prevention Course Fit In?

It fits within this figure that depicts my view of how testing and treatment work for stone prevention.

Things begin when physicians order initial tests (see ‘begin’ on figure) to identify the main abnormalities and make a treatment plan that includes diet and fluids.

Because the kidney stone prevention course aims at enabling the fluid and diet goals, it stands between when physicians identify those urine abnormalities and when patients adjust their fluid intake and diet within their lives so as to correct the abnormalities found.

It could also stand between any subsequent urine abnormalities due to unfavorable fluid or diet use and the retest to determine if the new treatment has the desired effects.

It acts much like Jill’s private coaching but with a group format that conveys greater scale, and lower cost per patient. Group interaction is a side benefit above private coaching. People get the audio file of every session.

They also get email support during the course. How much this adds and whether this can be maintained under increasing scale of courses remains uncertain.

What Has Happened So Far?

To date 57 people have enrolled in 5 courses of which 2 have completed. We have 22 email comments pending return of formal survey questions. Their uniformly positive tone encourages us that the courses are meeting real demands from patients.

Missing Parts

Responses to Poor Retest Outcomes

What happens when the 3 month retest results are poor for patient graduates of the course? Or 6 month, or one year retests?

Presently, nothing.

But in the future we will need another unit, probably individual free standing question and answer sessions for graduates who encounter less than ideal outcomes and need special issues resolved. They cannot redo the whole kidney stone prevention course but need the scale and cost benefits of group education.

Call this offering phase two. It serves not only problems from the 3 month retest but all subsequent problems graduates encounter within the purview of fluid and diet management.

Timely Review for Successful Graduates

Those of us with a long experience know that success breeds failure, that years stone free create a sense that all is well. But it may not be well and stones recur. Presently we consider some kind of one hour, perhaps yearly review for those doing well. Call it phase three.

Maintenance in Treatment

Ultimately physicians drive and maintain treatment. A course structure, a website – these are ancillary. But the outcomes of the courses concern us: Do people stay in their diet plans, their fluid plans; do their tests get done; are they good? We do not have a real plan right now. But need one soon.

Integration of the Kidney Stone Prevention Course and This Site

As a writer of her own articles Jill teaches from what she put up on this site. She also uses whatever I or others have written that concerns fluids and diet. Because the site rests upon the peer reviewed literature so does the course material and what patients learn.

One might think people would want to read an article, on sodium for example, before that part of the course. But no; they usually prefer to hear the discussion and then read, if at all. We have not collected formal data on this point but it suggests something about use of a knowledge source vs. direct education by a teacher.

Why Do I Say ‘We’ When Jill Does All the Work?

Because the site and the kidney stone prevention course work together.

I propose this specific combination of a web based course and knowledge base might constitute a new paradigm fostering large scale stone prevention. Modern media, web based, support public, affordable, scalable education about that part of patient care that patients must themselves accomplish. In stone disease and maybe beyond we desire to innovate and get better care for patients. Doing it, and ultimately presenting the results – this is coarse grained, public, clinical experiment. Not perhaps real research. We have no control groups, and aim only at the good of patients. But we will observe and see how well the graduates do.

38 Responses to “KIDNEY STONE PREVENTION COURSE”

  1. Kevin G. McAree

    I am a 62-year-old male whose first kidney stone was discovered in October, 2016. That is when my kidney cancer was found also. Though it was classified as Stage 1B, I am now considered Stage 3 CKD. Now I have to watch my sodium, potassium, phosphorus, and protein intake as well as my oxalate levels. I am looking for a diet program that takes all of this into consideration.

    Reply
    • Fredric Coe, MD

      Hi Kevin, given CKD 3 you do not have to limit your diet potassium or phosphorus but simply avoid excesses. Protein intake can be in the normal limit of 0.8 to 1 gm.kg/day. For your kidneys stones, prevention should follow a complete evaluation for causes, so be sure that has been done. The courses are available as per the link from this article. Let me know if you have trouble contacting Jill Harris who runs them. Regards, Fred Coe

      Reply
      • Kevin G. McAree

        After my surgery, my Creatinine was 1.35. I had the 24-hour urine test done in June. My 24-hour Creatinine was 3.32, eGFR was 56, potassium was 4.1, sodium 142, calcium 192 oxalate acid was 56. Nephrologist told me to eat more fruits and vegetables and less meat. Will the course still help?

        Reply
        • Fredric Coe, MD

          Hi Kevin, Your serum creatinine is a bit high but your 24 hour urine creatinine is mammouth. If the collection was accurate for 24 hours you have a very large muscle mass. The creatinine clearance (liter/day) is urine creatinine (mg/d)/serum creatinine (mg/l) which is in your case 3320 mg/d/13.5 mg/l or 245 l/d, or in ml/min which is what is usually calculated 171 ml/min. The eGFR equation assumes a urine creatinine but for people with so much muscle mass as you appear to have (normal urine creatinine is 1600 to maybe 2000 mg/day) your serum values gives a reduced clearance. The other possibility is that you are giving me a 48 hour urine creatinine or somehow over collected. Likewise your urine oxalate is very high, and perhaps that is also a collection artefact, or perhaps real. In any event your nephrologist might want to look at the urine creatinine and consider if the collection is correct. Regards, Fred Coe

          Reply
  2. Susan Buckner

    I just finished my sixth lithotripsy over the course of about 12 years. My first stones were tested and were calcium oxalate. I am a recently retired RN and need to get serious about prevention. I hope to sign up for the class.

    Reply
  3. Beverly Dow

    Dr Coe
    I was in an auto accident 3 years ago. I had blunt trauma (bruising and contusions) to the right kidney with no penetration. Several weeks after accident upon routine blood and urine I was found to have blood in urine and elevated uric acid, kidney function tests. Referred to urologist for ct scan, 24 hour urine. Regular xray did not show stones, so they were assumed to be uric acid stones. No stones collsction or analysis done. Ct scan showed several kidney stones in right kidney. Put on potassium citrate er 15meq 1 tab 2x daily, theralith xr 2 tablets twice a day, increase fluids. I started to experience kidney stone attacks within 2 weeks and have had 5 attacks so far.
    Recent ct scan still shows stones present in rt kidney. Prior to auto accident no hx of kidney stones. Had ct scan several yrs prior to accident prior to colonoscopy that showed no stones.
    Do you know of any association of blunt trauma to kidney from an auto accident that caused damage and subsequent formation of kidney stones. My current age is 72. Thank you

    Reply
    • Fredric Coe, MD

      Hi Beverly, The best guess is some kidney injury from the accident, loss of some kidney function, lower urine pH, and uric acid stones. They should stop with potassium citrate but all is in measurement. What were the 24 hour urine pH values before treatment? How about during that treatment. What else is wrong in the urine chemistries? On CT your physicians can ascertain uric acid by the magnitude of radiographic density – anyone can do it. Uric acid has a low density. Be sure you have been fully evaluated. Regards, Fred Coe

      Reply
  4. Denise Alexander

    Jill thank you for your quick reply. Can you tell me what time and what day of the week you will be having the calls? I live in California and work full time so I want to make sure that it is on a day and time that I can call in. Also if we have to miss a call will there be a recording available? I’m looking forward to joining the class.

    Reply
  5. Denise Alexander

    Is the Kidney Stone Prevention course still being offered? If so how can I get more information?

    Reply
    • jharris

      Hi Denise.

      Yes it is and it’s been very successful. You can go to jillharriscoaching.com/course to sign up. A new one will be starting in the next couple of weeks. They fill up quickly so sign up soon!

      Warmly,

      Jill

      Reply

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